1 Year Old today

It is hard to believe that it has been a year, Zane has grown and is starting to hit most milestones, he still has oral aversions and this makes it difficult with him learning how to eat. But he is now rolling over and starting to hold us upper body up more on the road to crawling. He can sit up right for a few seconds but still has some deficits on his right side.  Grandma purchased a horse for Zane to learn how to "ride" or at least how to sit up and use his stomach muscles.  Zane is now 13lbs and has started to use his voice to let us know of his displeasure and happiness. He has a smile that lights the world and loves his cousin, who makes him laugh just by saying hello.

The big day has arrived... IT IS TIME TO GO HOME 4/16

After many days, weeks and months of waiting and watching  Zane he will be discharge home today, to most people this Friday is no different than any other but we know differently, our lives were change the day this baby was born and no day will ever be the same,

Zane has been able to ward off most of the bugs in the hospital, survive several major operations  but thanks to the abilities of his nurses he will leave this hospital with a few minor problems,

5lb 7 ounces

Zane has taken off with his weight gain and is actually chubby, he is taking 2 to 2 1/2 ounces of formula, all his test have been completed, scans are done, labs have been rechecked and don't tell Zane but he is expected to come home Friday

April fools day

That is the day they choose to take Zane back to surgery, he was reanastomosed and had his hernia repaired.  He came back to the unit intubated and sedated, which based upon his girth was a good plan. He was abdominal was very  distended from the surgery and he was not allowed to eat for several days, until the girth decreased.

Friday he was started out slowly and he soon let everyone know that he was not happy about having his food decreased, by Sunday he was up to full volume and was tolerating all his feeds, the doctors then spoke to Sam and told her that they are hoping for him to leave the hospital this week...

Everyone is excited and we can't wait for the day for him to come home, as soon as he arrives home I will put up the new photo's

it has been a long 147 days....

Yipee the surgery went well!

So many possible complications, the worse being blindness, so much time worrying but thank God that he guided the surgeons hands and Zane did wonderful other than him being hungry that first day!

 He was extubated a day later and because he had so few problems Dr. Rice decided that he would go ahead and schedule him for the reanastomosed next week after he heals and is back up to full bottle feedings he can go home.,

Surgery

Zane was in the OR for 3 1/2 hours it was a long day for him and his mother.  The doctor felt that the surgery went well and she will know more when she checks his eyes in a few days.  He came back to the  neonatal unit intubated and paralyzed ( I hope that they gave him pain medicine as well)  In this photo he looks like a big fly with both of his eye patches. Please pray that all went well and that we will receive good news on his next eye check.  It is our hope that he can go home in the next two weeks.

Minor set backs

Zane has been doing wonderfully, eating all his feeds when his nurses and parents feed him. Samantha has become proficient in changing out his ostomy bag and giving him a bath.   He has steadily gained weight and he is now  2.060 (4lb 5 oz). 
He did develop some thrush on his tongue and he was given nystatin but this did not seem to help him and his feeding was dropping off (as I can only imagine that his tongue hurt him) so a 3 day course of gentian violet which works quickly.  Unfortunately no one told Samantha to expect to see a purple mouth and she "freaked" out when she saw his lips were blue, she of course thought he was cyanotic!

After the first day we could see a change in him and he started to eat a lot better.   Dr. Toth  who specialized in vitreoretinal diseases felt that Zane needed to have his retina operated on to save his vision. His ROP had advanced to stage IV.  He is to have surgery on Friday on both of his eyes. He will be intubated again and his feeds will be held until he is awake enough to start eating. So keep your fingers crossed for a good outcome for Zane