Zane has been doing wonderfully, eating all his feeds when his nurses and parents feed him. Samantha has become proficient in changing out his ostomy bag and giving him a bath. He has steadily gained weight and he is now 2.060 (4lb 5 oz).
He did develop some thrush on his tongue and he was given nystatin but this did not seem to help him and his feeding was dropping off (as I can only imagine that his tongue hurt him) so a 3 day course of gentian violet which works quickly. Unfortunately no one told Samantha to expect to see a purple mouth and she "freaked" out when she saw his lips were blue, she of course thought he was cyanotic!
After the first day we could see a change in him and he started to eat a lot better. Dr. Toth who specialized in vitreoretinal diseases felt that Zane needed to have his retina operated on to save his vision. His ROP had advanced to stage IV. He is to have surgery on Friday on both of his eyes. He will be intubated again and his feeds will be held until he is awake enough to start eating. So keep your fingers crossed for a good outcome for Zane
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